Living Well with IPF: Strategies to Become Your Best Patient Advocate

Welcome! You’re here to learn more about IPF care and how to manage yours or your loved one’s condition. Communicating with your IPF doctors and nurses can be hard if you don’t know much about the disease or its therapies. Not only that, receiving an IPF diagnosis and all it entails can be frightening for both patients and families.

That’s exactly why we’ve prepared this educational tool. First, the tool will measure what you already know about IPF. Then you’ll receive personalized information on how you and your family can make the best decisions about your IPF care. Living well with IPF starts with a single step.

Get started by getting to know our patient advocate, IPF caregiver, and esteemed clinicians who helped make this resource possible; their stories are featured throughout. Take a moment to listen to and watch their audio and video introductions below:

Robert, an IPF patient

Michele, an IPF caregiver

Imre Noth, MD

  • Professor of Medicine
  • University of Virginia School of Medicine
  • Division Chief, Pulmonary and Critical Care Medicine
  • University of Virginia Health Systems
  • Charlottesville, VA

Cathy Brown, RN

  • Nurse Specialist, Interstitial Lung Disease
  • University of Virginia Health Systems
  • Charlottesville, VA

Sponsor Information

Sponsored by the Academy for Continued Healthcare Learning.

Supporter Information

Supported by an educational grant from Boehringer Ingelheim Pharmaceuticals.

Program Manager

Katlyn Cooper
Phone: (773)714-0705 ext. 203

Disclaimer: Please be advised that all information within Living Well With IPF: Strategies to Become Your Best Patient Advocate is provided for informational purposes only. This platform does not provide medical advice. It is not a substitute for professional medical advice, diagnosis, or treatment.